Grateful Dead

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Hozomeen's picture
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Joined: Jun 22 2007
So Cool

I'm happy that your son started coming out of his shell at the show. I had a similar experience long ago, and here I am, still joined at the hip with the music and the scene. There is really something therapeutic being among people who are understanding of other's differences. My thanks to all the heads out there, especially the ones at the Philly show...deadheads are good people...I'm happy you got to share that experience with your son. I'm biding my time until I can get out there with my boy. With any luck, this time next year we will be able to afford leaving the house.

I think tphokie is right, the people on the spectrum are gonna start coming out of the woodwork eventually, because the fact remains, the deadlot and Dead shows are good places for autistic people for a good many reasons...so I expect that there are more of us out there.

I went to an autism forum today...they were teaching school teachers about autism, and part of their training is talking to some aspies and asking questions. I took some notes, but I don't wanna post them yet, I'll wait until next week's forum and post both at once. I'm just blown away by tphokie's story right now. Here's to the boys for making our scene possible, here's to the fans for making our scene possible, and here's to you MaryE for making our online scene possible...

Nostrovia

marye's picture
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Joined: May 26 2007
very cool, tphokie!

so glad your son loved the show and that Heads are being cool and welcoming with him.

TigerLilly's picture
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Joined: Jul 2 2007
What a wonderful story

tphokie! Can imagine how grate that felt to watch your child feel so much enjoyment and comfortable in his surroundings!
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie1's picture
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Joined: Jun 9 2007
I saw my son come out of his shell

on Sunday night in Philly! He's always enjoyed the shows but something special happened at this one. He was striking up conversations with people (I think he's starting to realize that Deadheads are cool with his autism). I wish I had video of him singing "You know our love will not fade away" at the top of his lungs while clapping out the rhythm at the end of the 2nd set! After the show he was telling everyone "That was the hottest show I've ever seen!" It was an awesome experience for me. There's definitely something therapeutic about the music and the scene! Thanks to the band and all you Deadheads out there!

tphokie1's picture
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Joined: Jun 9 2007
Another useful read.

Another very useful book for understanding autism is "Thinking in Pictures" by Temple Grandin. Grandin is one of the leaders in building equipment for handling large animals. She also has autism. At last report she was a professor at Colorado State University, although I'm not sure if that's still accurate. She writes books on animals and autism. She says that her autism actually helps her understand animals and see things through their eyes. She has written several other books on autism but I can't recall all the titles right now, but anything by her on autism should be helpful. She is also a frequent speaker at seminars on autism.

Hozomeen's picture
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Joined: Jun 22 2007
Regional Resources

Here are a couple of websites that were given to me by TEACCH...
http://www.grasp.org/
http://www.autisticadvocacy.org/

tphokie1's picture
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Joined: Jun 9 2007
Thanks for the article, Marye.

I heard about the high rate of autism in the Silicon Valley and the idea that it could be related to the aptitudes of parents. That many with Asperger don't fit the DSM diagnostic criteria was something I hadn't heard and may be useful information for me personally. I always dismissed any suggestion that I have Asperger specifically because I didn't fit the criteria. Peace, Preston

marye's picture
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Joined: May 26 2007
re the accompanying

article, the alert Head will note that it is by our own Steve Silberman.

tphokie1's picture
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Joined: Jun 9 2007
Took the Autism Quotitent test

My score was 36. So according to that perhaps I should take more seriously those who tell me I have Asperger Syndrome!

Hozomeen's picture
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Joined: Jun 22 2007
Lilly

I'm sure your friend has a doctor if he is diagnosed, so I won't try to find that. I did find a group though for children and adults at meetup.com:

http://www.meetup.com/CASPAN/

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Roll Away the Dew - Heads on the Spectrum