Grateful Dead

41 replies [Last post]
marye's picture
Offline
Joined: May 26 2007
This topic comes from a discussion in the Help on the Way topic concerning various folks' experiences with autism. Here's a place to hang out, discuss, learn more, and generally look out for each other.

Comments

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.
marye's picture
Offline
Joined: May 26 2007
I would be remiss

if I did not point out that there's a new thread involving our own Steve Silberman, who in his other life is a noted author on the subject of autism. Head on over and talk to him: http://www.dead.net/features/all-family/all-family-steve-silberman.

Anna rRxia's picture
Offline
Joined: Dec 25 2009
Speaking of Downs Syndrome (not unrelated)

From the French Press Agency toay AGENCE FRANCE PRESSE

KATHMANDU: A 15-year-old American boy has become the first teenager with Down's syndrome to reach Everest Base Camp, according to his father, in an attempt to inspire different attitudes towards people with disabilities.

Eli Reimer, from Oregon, reached the 5,364 metres high camp in Himalayan mountains in mid-March after 10 days of trekking.

"Part of the focus of this trek was on having at least one disabled trekker go with us and through their attempt, we wanted to point to the abilities of the 'dis'-abled," his father Justin, who was part of the expedition team, told AFP.

The trek was also a fund-raiser for the Elisha Foundation, founded by Eli's parents, which works with disabled people and their families. Eli is believed to be the first teenager to reach the base camp.

marye's picture
Offline
Joined: May 26 2007
Hidden Wings

Some folks might want to take a look at this group, which received the most recent Bill Graham Award from the Rex Foundation. They work with autistic folks; music is involved! http://rexfoundation.org/2013/02/14/sharing-a-letter-from-hidden-wings/

tphokie1's picture
Offline
Joined: Jun 9 2007
He's doing well overall!

Continues to enjoy live music! We just saw Railroad Earth a couple weeks ago and he had a great time. We saw Furthur at Merriweather Post Pavilion last summer and he was blown away!. He turns 17 this summer and the hormonal shifts of being that age coupled with autism have created some challenges for all of us, but he continues to be a sensitive and amazing young man. He teaches me new things everyday!

marye's picture
Offline
Joined: May 26 2007
how's

your son doing these days?

tphokie1's picture
Offline
Joined: Jun 9 2007
Marye

Good to be back! Took a bit of a break but I'm glad to be back!

marye's picture
Offline
Joined: May 26 2007
hey tp!

nice to see you back here!

tphokie1's picture
Offline
Joined: Jun 9 2007
Dancing Rose

I've been away for awhile but I was moved by your post. Glad you found some strength here. Please feel free to contact me if you need anything.

Dancing Rose's picture
Offline
Joined: Dec 10 2009
A grateful thanks...

I see this forum has been quiet for some time however I am pleased I found it - as we are in the process of finding out where our 2.5 year old son falls on the spectrum and if indeed it is autism. He has been involved with a program called Birth to 3 for speech as he is non-verbal but has lots to say jabber-wise. We've been in the program for 6 months and have heard him say "bah" for bye and "bur" for bird. It's been sweet music to our ears. Birth to 3 has recommended us to a developmental specialist whom we see in a couple weeks from now. The unknown is hard as we "fit" nowhere for support groups as we do not have a diagnosis yet. As our son "looks normal", family members and friends are having a hard time understanding that something is going on. So, its been lonely but we press on. I just wanted to share that I found strength in this forum and want to say thanks to you all.

marye's picture
Offline
Joined: May 26 2007
this came up in another topic

Comments

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.
Roll Away the Dew - Heads on the Spectrum