Grateful Dead

44 replies [Last post]

Comments

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.
tphokie1's picture
Offline
Joined: Jun 9 2007
Dancing Rose

I've been away for awhile but I was moved by your post. Glad you found some strength here. Please feel free to contact me if you need anything.

Dancing Rose's picture
Offline
Joined: Dec 10 2009
A grateful thanks...

I see this forum has been quiet for some time however I am pleased I found it - as we are in the process of finding out where our 2.5 year old son falls on the spectrum and if indeed it is autism. He has been involved with a program called Birth to 3 for speech as he is non-verbal but has lots to say jabber-wise. We've been in the program for 6 months and have heard him say "bah" for bye and "bur" for bird. It's been sweet music to our ears. Birth to 3 has recommended us to a developmental specialist whom we see in a couple weeks from now. The unknown is hard as we "fit" nowhere for support groups as we do not have a diagnosis yet. As our son "looks normal", family members and friends are having a hard time understanding that something is going on. So, its been lonely but we press on. I just wanted to share that I found strength in this forum and want to say thanks to you all.

marye's picture
Offline
Joined: May 26 2007
this came up in another topic
tphokie1's picture
Offline
Joined: Jun 9 2007
The magic of music

Josh and I attended the Festy Experience in Roseland VA a couple weeks ago. Once again I saw how music helps Josh connect with others. A good friend of mine camped with us and for the first time he and Josh really connected. Ron (my friend) referenced the magic of music. He really came to appreciate Josh as a person over the course of the weekend! The two of them are now sharing jokes and really relating! What an awesome experience!

tphokie1's picture
Offline
Joined: Jun 9 2007
Cool!

My degree is in social work. I don't officially have the title of social worker but do work in human services. He sounds like an interesting guy to converse with.

TigerLilly's picture
Offline
Joined: Jul 2 2007
tphokie

my dad saw the movie you are talking about. He told me about it in our last phone conversation. He was a psychiatric social worker for over 20 years, and said was a very well done film. Will suggest him to you on FB (he loves new friends) and he can tell you more.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie1's picture
Offline
Joined: Jun 9 2007
Emmy awards

I don't watch awards show. I find them cheesy and boring. I wish I had watched the Emmys last night, however. HBO made a movie called Temple Grandin which won several awards last night. I have yet to see this movie as I don't have HBO so I can't comment on the film. For those of you who don't know Temple Grandin she is a woman with autism who has written numerous books on autism. She is a very inspirational figure in the autism community. While the film was winning a number of awards last night the real Temple was introduced to and spoke to the crowd. Definitely a great format for raising autism awareness! Has any one seen the movie? Is it available on DVD?

TigerLilly's picture
Offline
Joined: Jul 2 2007
Sounds really terriffic tphokie!!!!!!!!!!!!!

Even more important than the music in itself is that it seems that you've found a place where the teachers will be adaptable to his needs. I bet you will make all the difference in the world! Congrats and I wish your son a terriffic school year.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie1's picture
Offline
Joined: Jun 9 2007
Checking out my son's new school

My son with autism starts high school this year. Today we went for a tour of his new school. I threw on a Grateful Dead t-shirt this morning. Considering where we live I was shocked that half of his teachers are Deadheads! One of the special ed teachers is a Head and told Josh whenever he needed some down time (as he often does) to come to her room and they would listen to some Dead! That's one of his favorite ways of calming down at home so this should be a great option for him. I really feel confident that having Dead heads as teachers will make this a great year for him!

tphokie1's picture
Offline
Joined: Jun 9 2007
badger

Thanks for the post. I read this article and this could make a huge difference. It took over 2 years to find out what was going on with our son. This was 2 years of agony for us and it was 2 years he went without services that could have made a huge difference in his quality of life. Having a physical marker would be hugely important. Our daughter has Down Syndrome. She was diagnosed prenatally with a simple chromosome test that indicated in black and white that she had DS. She started getting the services she needed literally from the moment she was born! No one ever questioned whether she had DS. The facts were right in front of them. On the other hand, we have had family and friends question whether his diagnosis is accurate. If people, including health professionals, can see it they believe it! Thanks again for this encouraging information.

Comments

Comment viewing options

Select your preferred way to display the comments and click "Save settings" to activate your changes.
Roll Away the Dew - Heads on the Spectrum