Grateful Dead

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cosmicbadger's picture
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Joined: Jun 13 2007
and more here

http://www.bbc.co.uk/news/health-10929032

cosmicbadger's picture
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Joined: Jun 13 2007
New scan could improve autism diagnosis

This may of interest...featuring on BBC news today

http://www.bbc.co.uk/news/health-10933276

tphokie1's picture
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Joined: Jun 9 2007
MacLain

I'm so happy for you! Floydfest is a great festival, its our favorite. Getting a VIP package should be awesome. We went last year and were planning on going this year but our plans changed. Its a bummer we won't get to meet you there. I'm sure you'll have a great time and it should be a fantastic getaway for you! Thanks for all the helpful info.

Preston

Hozomeen's picture
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Joined: Jun 22 2007
Update

Preston, I've seen my son have small seizures like that before. It was like he was starring off into space, just absorbing something, or concentrating really hard, and like your son he wouldn't respond. Does your son or you ever experience tics?

This week I got together with a couple of other aspies, and we are starting a group in our town called the Autistics Self Advocacy Network...ASAN. Look online and see if there is a chapter near you that you could join. It is an organization that is meant to be a network of sorts for folks like us. Nero Typical people are encouraged to join as well, but they can't be officers.

I went to an autism forum for teachers yesterday. It was pretty cool to get to relate stories of autism and how it has affected me/us for years to people interested in learning about it. I related a story about my being in eighth grade, and I didn't know that these guys were trying to make friends with me by joking around. It was my first day of school in a new town, and I was sitting in class just waiting for the bell to ring. Anyway, this group of guys were all sitting and laughing at something they got from this girl's purse. The "ringleader" called me over, and I looked and they all burst out laughing even harder. I didn't see the appeal. I didn't know what was so funny, so I only assumed that they were laughing at me. Tired of having been picked on and singled out, I singled out the ringleader. As soon as the bell rang I followed him out in the hall and waylaid him into the lockers. He scrambled to get up and ran down the hall screaming that I was crazy...see, I didn't realize that they were trying to include me, not single me out. This isn't the only time this has happened to me. It also happened a couple of times in college. Luckily I never got in to terribly much trouble. Now I am a different person where this is concerned. I've learned not to assume that people are singling me out.

We talked about other issues like sensory issues and public opinion. One thing that has always been a problem for autistic people is bullying...I hate to see it, but it is really up to us to learn to deal with it until the day comes when we rule. Just kidding. Groups like ASAN are meant to educate the public and try to sway their opinion in the right direction. Until that happens, we'll just have to learn to deal with the bullying.

Preston...good luck to you and your son. It shouldn't be serious, just something that is related to an already known condition. I'm trying to help you not worry, but you should definitely go see your doctor about it.

See you guys soon. We are off to Floydfest this weekend. I entered about thirty contests the other day, and I won one....four day VIP passes. We even get massages. This is going to be our vacation. Have a great weekend.

MacLain

tphokie1's picture
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Joined: Jun 9 2007
Thanks Lilly

I think we will definitely do that!

TigerLilly's picture
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Joined: Jul 2 2007
tphokie

he said that seizure disorder can be a part of autism, and you should really consult a doctor.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

TigerLilly's picture
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Joined: Jul 2 2007
I will ask my friend

tphokie, later today when he comes online, whether he has any info to share with us about this eye wandering topic. I would also suspect, like your boss joked, that he may have been in a sort of dreaming while awake (daydreaming if you will) state-but then I am no expert so I will ask.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie1's picture
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Joined: Jun 9 2007
Here's a question if anyone can help

My son Josh (the one with autism) was observed twice yesterday looking straight ahead but his eyes were moving rapidly as though tracking something moving very fast. His Mom observed this once and then I saw it later in the day. Both times he responded quickly when we called his name but was unable to duplicate the movement of his eyes when he tried to do it. He has had no history of seizures to this point but is 14 and seizures often start in kids with autism at this age. People I've discussed it with suggested seizures or possibly hallucinations. My boss said, "sounds like he's tripping" only half jokingly. I replied "Maybe he got into something in Philly last Sunday that hasn't worn off!" but I'm sure that is not the case! We will of course discuss this with his doctor on his next visit but I wondered if anyone else has had a similar situation and might give some insight. Thanks, Preston

Hozomeen's picture
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Joined: Jun 22 2007
So Cool

I'm happy that your son started coming out of his shell at the show. I had a similar experience long ago, and here I am, still joined at the hip with the music and the scene. There is really something therapeutic being among people who are understanding of other's differences. My thanks to all the heads out there, especially the ones at the Philly show...deadheads are good people...I'm happy you got to share that experience with your son. I'm biding my time until I can get out there with my boy. With any luck, this time next year we will be able to afford leaving the house.

I think tphokie is right, the people on the spectrum are gonna start coming out of the woodwork eventually, because the fact remains, the deadlot and Dead shows are good places for autistic people for a good many reasons...so I expect that there are more of us out there.

I went to an autism forum today...they were teaching school teachers about autism, and part of their training is talking to some aspies and asking questions. I took some notes, but I don't wanna post them yet, I'll wait until next week's forum and post both at once. I'm just blown away by tphokie's story right now. Here's to the boys for making our scene possible, here's to the fans for making our scene possible, and here's to you MaryE for making our online scene possible...

Nostrovia

marye's picture
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Joined: May 26 2007
very cool, tphokie!

so glad your son loved the show and that Heads are being cool and welcoming with him.

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Roll Away the Dew - Heads on the Spectrum