Grateful Dead

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tphokie1's picture
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Joined: Jun 9 2007
Checking out my son's new school

My son with autism starts high school this year. Today we went for a tour of his new school. I threw on a Grateful Dead t-shirt this morning. Considering where we live I was shocked that half of his teachers are Deadheads! One of the special ed teachers is a Head and told Josh whenever he needed some down time (as he often does) to come to her room and they would listen to some Dead! That's one of his favorite ways of calming down at home so this should be a great option for him. I really feel confident that having Dead heads as teachers will make this a great year for him!

tphokie1's picture
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badger

Thanks for the post. I read this article and this could make a huge difference. It took over 2 years to find out what was going on with our son. This was 2 years of agony for us and it was 2 years he went without services that could have made a huge difference in his quality of life. Having a physical marker would be hugely important. Our daughter has Down Syndrome. She was diagnosed prenatally with a simple chromosome test that indicated in black and white that she had DS. She started getting the services she needed literally from the moment she was born! No one ever questioned whether she had DS. The facts were right in front of them. On the other hand, we have had family and friends question whether his diagnosis is accurate. If people, including health professionals, can see it they believe it! Thanks again for this encouraging information.

cosmicbadger's picture
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Joined: Jun 13 2007
and more here
cosmicbadger's picture
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Joined: Jun 13 2007
New scan could improve autism diagnosis

This may of interest...featuring on BBC news today

http://www.bbc.co.uk/news/health-10933276

tphokie1's picture
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Joined: Jun 9 2007
MacLain

I'm so happy for you! Floydfest is a great festival, its our favorite. Getting a VIP package should be awesome. We went last year and were planning on going this year but our plans changed. Its a bummer we won't get to meet you there. I'm sure you'll have a great time and it should be a fantastic getaway for you! Thanks for all the helpful info.

Preston

Hozomeen's picture
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Joined: Jun 22 2007
Update

Preston, I've seen my son have small seizures like that before. It was like he was starring off into space, just absorbing something, or concentrating really hard, and like your son he wouldn't respond. Does your son or you ever experience tics?

This week I got together with a couple of other aspies, and we are starting a group in our town called the Autistics Self Advocacy Network...ASAN. Look online and see if there is a chapter near you that you could join. It is an organization that is meant to be a network of sorts for folks like us. Nero Typical people are encouraged to join as well, but they can't be officers.

I went to an autism forum for teachers yesterday. It was pretty cool to get to relate stories of autism and how it has affected me/us for years to people interested in learning about it. I related a story about my being in eighth grade, and I didn't know that these guys were trying to make friends with me by joking around. It was my first day of school in a new town, and I was sitting in class just waiting for the bell to ring. Anyway, this group of guys were all sitting and laughing at something they got from this girl's purse. The "ringleader" called me over, and I looked and they all burst out laughing even harder. I didn't see the appeal. I didn't know what was so funny, so I only assumed that they were laughing at me. Tired of having been picked on and singled out, I singled out the ringleader. As soon as the bell rang I followed him out in the hall and waylaid him into the lockers. He scrambled to get up and ran down the hall screaming that I was crazy...see, I didn't realize that they were trying to include me, not single me out. This isn't the only time this has happened to me. It also happened a couple of times in college. Luckily I never got in to terribly much trouble. Now I am a different person where this is concerned. I've learned not to assume that people are singling me out.

We talked about other issues like sensory issues and public opinion. One thing that has always been a problem for autistic people is bullying...I hate to see it, but it is really up to us to learn to deal with it until the day comes when we rule. Just kidding. Groups like ASAN are meant to educate the public and try to sway their opinion in the right direction. Until that happens, we'll just have to learn to deal with the bullying.

Preston...good luck to you and your son. It shouldn't be serious, just something that is related to an already known condition. I'm trying to help you not worry, but you should definitely go see your doctor about it.

See you guys soon. We are off to Floydfest this weekend. I entered about thirty contests the other day, and I won one....four day VIP passes. We even get massages. This is going to be our vacation. Have a great weekend.

MacLain

tphokie1's picture
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Joined: Jun 9 2007
Thanks Lilly

I think we will definitely do that!

TigerLilly's picture
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Joined: Jul 2 2007
tphokie

he said that seizure disorder can be a part of autism, and you should really consult a doctor.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

TigerLilly's picture
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Joined: Jul 2 2007
I will ask my friend

tphokie, later today when he comes online, whether he has any info to share with us about this eye wandering topic. I would also suspect, like your boss joked, that he may have been in a sort of dreaming while awake (daydreaming if you will) state-but then I am no expert so I will ask.
**********************************
By trying we can easily learn to endure adversity -- another man's I mean.
Mark Twain

tphokie1's picture
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Joined: Jun 9 2007
Here's a question if anyone can help

My son Josh (the one with autism) was observed twice yesterday looking straight ahead but his eyes were moving rapidly as though tracking something moving very fast. His Mom observed this once and then I saw it later in the day. Both times he responded quickly when we called his name but was unable to duplicate the movement of his eyes when he tried to do it. He has had no history of seizures to this point but is 14 and seizures often start in kids with autism at this age. People I've discussed it with suggested seizures or possibly hallucinations. My boss said, "sounds like he's tripping" only half jokingly. I replied "Maybe he got into something in Philly last Sunday that hasn't worn off!" but I'm sure that is not the case! We will of course discuss this with his doctor on his next visit but I wondered if anyone else has had a similar situation and might give some insight. Thanks, Preston

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Roll Away the Dew - Heads on the Spectrum